Living Life with UC

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Living with Ulcerative colitis is a lot like trying not to disturb a bear- the consequences can and will be painful. I have lived with UC for almost twenty years and I have managed to build a life in spite of the disease. I was twenty-two years old and a senior in college when the symptoms first appeared.

Ulcerative colitis is an inflammatory bowel disease which affects over 900,000 Americans of all genders and races.1 Ulcerative colitis is inflammation of the colon, which can cause the following symptoms:

-Diarrhea (with blood or pus in the stool)

-Stomach cramps

-Bloating

-Joint pain

-Fatigue

-Anemia due to the loss of blood

-Weight loss

If you are experiencing any of these symptoms, please seek medical treatment as soon as possible. If you are referred to a specialist, the specialist will want to perform a colonoscopy to confirm the diagnosis. As of now, there is no cure for Ulcerative colitis or any other inflammatory bowel disease, it can only be controlled through diet, medication, exercise, and managing stress levels.

UC is a lifelong diagnosis and a lifelong adversary, due to the flare-ups you may experience. In my particular situation, my UC went into remission for years, and I was able for a period of time not take any medication. However, my symptoms came back and I currently take two medications to control it- one a biologic I have to inject and new pills I am waiting to take effect. My last medication stopped working after three years.

Concerning the treatment of flare ups, your doctor will more than likely provide you with a steroid to help get the inflammation under control. Always make sure you study up on the medicine your prescribed, because all medicines have side effects, as do steroids.

Another way to help control the flares is to manage your diet. Test to see if certain foods trigger your symptoms- foods such as dairy products, caffeine, carbonated drinks, alcohol, high fiber foods, fried and fatty foods, breads, etc can affect UC.

Taking care of your mental health is also essential in dealing with UC. The constant sickness and pain can make you fatigued, which can lead to depression. The fear of having a flare up can cause anxiety about going out in public or even going to work. If you must, talk to a spiritual or mental health counselor concerning your situation.

UC has changed my life and it has changed the lives of my family. My UC recovery is also complicated by other autoimmune diseases such as hypothyroidism, Celiac disease, and osteopenia. However, in spite of these circumstances, I am determined to live my life to the fullest and to try and help others who are facing this problem. It is possible to live a satisfying life, even with UC.

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The Awkward In-Between

By Michael W. Raley

For a once solid relationship,

Which was built on love, trust, faith, laughs, and deep conversations,

The dynamics have changed forever.

Since you left,

The deafening sound of silence has dominated the conversation in this house.

We now talk occasionally and as always, with civility,

But something feels off to me.

I know this process has to run its course,

However, I now find myself in this awkward in-between,

Where I don’t know what to say to you,

As if we are strangers meeting for the first time.

We are both living our new lives

After half of a lifetime together.

I know I must adapt to the new reality

And find my own way without you.

 

 

Making Midlife Adjustments

“Everybody has a plan until they get punched in the mouth.”-Mike Tyson

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The greatest coaches and managers across all sports are able to make adjustments. These coaches and managers will study hours of film and spend additional hours putting in a game plan. It’s game day and all hell has broken loose. The plan isn’t working. The opponent has found a hole in your defense and is exploiting it. The offense can’t score, let alone gain any ground. What does the coaching staff do?

Make adjustments, that’s what the coaching staff does. The team gets together at halftime and tweaks the plan. The ability to adapt to an unplanned situation could mean the difference between a coach hoisting a championship trophy or being unemployed at season’s end.

Adaptability is a necessary skill in life. Adaptability is the difference between moving forward or staying stuck in an unfavorable situation. How do you adapt when a once solid relationship falls apart? What do you do when your financial bottom line changes? How do you handle a life-altering diagnosis? A crisis of faith?

Adaptation.

I have chronicled many of my life’s changes and struggles from my mental and physical health to my current situation, which is my impending divorce. It is still early in the divorce process, and I know the process has to play out. However, I never thought I would be making this particular “midlife adjustment.” This 1275 square foot home looks empty and sounds very cavernous, especially¬† when the dogs bark. However, I am making the best of the situation, and adjusting my financial lifestyle. I have never been a man of means, but I have found some fat that needs to be trimmed.

Adapting to life’s changes doesn’t mean you have to stop enjoying your life. This lesson I learned after my Celiac disease diagnosis. I had to be diligent in reading food labels and look out for the words”wheat,” “barley,” and “rye.” I have since learned there are derivatives of these products as well. I would often lament over the food I couldn’t have, but I learned to enjoy a bevy of new foods. Truth be told, many of the gluten-filled foods weren’t that good for me in the first place. If I can change my eating habits at thirty-nine, I can make adjustments from a divorce at forty-one.

I know it sounds cliche, but I am getting through this process one day at a time. It’s just me, the two dogs, the guinea pig, and the turtle. I must continue to take care of my physical and mental health in this situation, as the stress of all this has affected my body. My wife and I have told our immediate families, but there has not been a widespread announcement, which will come shortly. Part of me wants to get it out there and into the open, but another part of me doesn’t want the barrage of questions and the looks of judgments from others.

This looming divorce was never in the game plan. In the back of your mind, you always ask the “What if” questions of life, but you never see it coming. This was the punch in the mouth I did not expect, but I am clearing out the cobwebs. I have had my good days and the bad days that make you want to dig a hole and stay there, but I know I must persist. I will be fine. A long period of adjustment is coming, but I am willing to do the work and improve myself.

 

The Life Changer

 

My wife has filed the divorce papers and they are now in my possession. I signed off on the papers in front of the notary, but it doesn’t make seeing the “Filed” stamp any easier. The papers of course, have their legal jargon such as “dissolution of marriage,” “petitioner,” “respondent,” and the statement, “The marriage is broken.” I never thought that eighteen years of marriage could come down to a stack of paperwork stamped by a county employee.

I will not get into specifics, but I can say we are trying to split amicably. My wife has rented an apartment and I will get the house. We were never able to have children, so no one else has to be dragged through this. We have also divided up the physical possessions and are working on the final financial details. If the judge determines the paperwork is in order, the divorce could be final in as little as 60 days.

I have had my good days and bad days with this situation, but I have resolved to move on with my life. I know plenty of people who have been divorced and there is no shame in it, but I will not allow bitterness to consume me. People like to use the term “game changer,” however, this is a life changer.

Divorces and break-ups are long processes, as there are a lot of emotions involved. However, I am determined to do the work necessary to get through this grief. I have worked through a couple of stages, mainly disbelief and anger. My heart is broken, as this is another hard life event, as has everything else in the last three years.

I know what steps I have to take, but I have made a list of promises for myself:

-Do not become bitter.

-Do not let the anger consume you.

-No disparaging remarks concerning my wife.

-Set new goals in every aspect of life.

-Work on improving myself each day.

-Life live with a renewed purpose.

-Live this life for myself.

 

 

Paperwork and Boxes

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By Michael W. Raley

I never thought it would happen to me.

I never thought that I would become a statistic,

But here I am.

You are ready to move on and leave me here.

Alone.

After every trial we faced,

Every obstacle we overcame,

This life we built together

Comes down to paperwork and boxes.

I thought we communicated well,

Yet our problems accumulated like the clutter

That has piled up in our home.

I didn’t want this,

I didn’t ask for this,

And I certainly don’t deserve this.

Yet here we are,

Deconstructing a life into paperwork and boxes.

The Unheeded Dangers

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By Michael W. Raley

I loved you for such a long time,

Maybe I took for granted you’d always be mine.

We had a life, we had a history;

We had love, we had an unspoken chemistry.

We have come to the end of this romantic episode,

As you are willing to leave and hit the road.

I know that in the course of relationships things change

And as situations occur, priorities get rearranged.

Unforunately, in this busyness and bustle,

Two people get lost in the shuffle

Of life, career, family, illness, money, it all piles on

And before you know it, those two youthful kids are gone.

The youthful kids are replaced by strangers

Who did not see the unheeded dangers.

Anger

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By Michael W. Raley

My anger, like the sun,

Rises slowly over the horizon

Penetrating the inner darkness.

No matter the situation,

The anger goads me,

Asking accusing question after accusing question

Until I respond in rage

And say what I’ve been hiding under the surface.

I know it’s not right and that I am better than this,

Yet, I pacify the anger instead of putting it away.

I have only so many cheeks to turn

And only so much humble pie I can eat.

No matter how hard I try,

No matter how much I pray,

No matter how much I change,

The anger grows back like a weed

And I am back to square one.