Living with Ulcerative colitis is a lot like trying not to disturb a bear- the consequences can and will be painful. I have lived with UC for almost twenty years and I have managed to build a life in spite of the disease. I was twenty-two years old and a senior in college when the symptoms first appeared.
Ulcerative colitis is an inflammatory bowel disease which affects over 900,000 Americans of all genders and races.1 Ulcerative colitis is inflammation of the colon, which can cause the following symptoms:
-Diarrhea (with blood or pus in the stool)
-Anemia due to the loss of blood
If you are experiencing any of these symptoms, please seek medical treatment as soon as possible. If you are referred to a specialist, the specialist will want to perform a colonoscopy to confirm the diagnosis. As of now, there is no cure for Ulcerative colitis or any other inflammatory bowel disease, it can only be controlled through diet, medication, exercise, and managing stress levels.
UC is a lifelong diagnosis and a lifelong adversary, due to the flare-ups you may experience. In my particular situation, my UC went into remission for years, and I was able for a period of time not take any medication. However, my symptoms came back and I currently take two medications to control it- one a biologic I have to inject and new pills I am waiting to take effect. My last medication stopped working after three years.
Concerning the treatment of flare ups, your doctor will more than likely provide you with a steroid to help get the inflammation under control. Always make sure you study up on the medicine your prescribed, because all medicines have side effects, as do steroids.
Another way to help control the flares is to manage your diet. Test to see if certain foods trigger your symptoms- foods such as dairy products, caffeine, carbonated drinks, alcohol, high fiber foods, fried and fatty foods, breads, etc can affect UC.
Taking care of your mental health is also essential in dealing with UC. The constant sickness and pain can make you fatigued, which can lead to depression. The fear of having a flare up can cause anxiety about going out in public or even going to work. If you must, talk to a spiritual or mental health counselor concerning your situation.
UC has changed my life and it has changed the lives of my family. My UC recovery is also complicated by other autoimmune diseases such as hypothyroidism, Celiac disease, and osteopenia. However, in spite of these circumstances, I am determined to live my life to the fullest and to try and help others who are facing this problem. It is possible to live a satisfying life, even with UC.
Christmas 2000 my mom and dad bought me a large red Craftsman toolbox, complete with sets of wrenches, ratchets, hex wrenches, and sockets. (I’m doing my Tim “The Tool Man” Taylor grunt from Home Improvement as I think about it). At the time my wife and I lived in our second floor apartment, where I kept the toolbox in the living room (which is a great conversation starter if you have company). Soon we bought a house and moved out of the apartment where the tool box till this day sits in my disorganized garage.
I still have and use all of those original tools, along with others that have been added over the years. My parents gave me those tool knowing that I would need them and they equipped me for any job that may arise. I have confidence that I have “the right tool for the job,” which started with a generous gift.
Tools are great when you have to change your car’s oil, replace a garbage disposal, or put a new heating element in the dryer, but not all of life’s problems can be fixed with a 7/16 wrench. Relationship issues, health problems, finances, school, spirituality, and whatever else life throws at you require a different set of tools. There are times though, when I wanted to take a metaphorical sledgehammer to life and do a demolition and rebuild.
When it comes to life’s problems, all of us have the tools to get the job done. I believe we are equipped by God and through our own experiences to work on the problem at hand. What if we realized how empowered we truly are to face our problems? We have to take the initiative to open the toolbox. Grabbed the wrong socket? Just get the next size larger or smaller. Maybe the bolt takes a metric socket instead of a standard, you just have to see what works and what doesn’t. If the problem comes up again, you’ll remember the exact tool you need.
Have you ever prayed and prayed, and prayed some more, but nothing happened? We all have. Have you ever sat by passively waiting on God or someone else to fix a problem? Meanwhile days, weeks, months, or even years may go by with no results and we are left wondering what is wrong. We’ll shrug our shoulders and say, “It wasn’t meant to be.” or “I guess it wasn’t God’s will.” But, what if our unanswered prayers are God’s way of telling us that we have the tools and we can take care of the problem ourselves? For example, I have three hammers, it would be silly of me to call my dad and ask to borrow a hammer because I have what I need.
Tools and resources are available and we must seek them out. Miracles just don’t fall out of the sky, as we have to live in the real world. The real world is a messy place, where we will get greasy and sweaty doing the hard work. We live in a time if great resources and information, thus there is no excuse for us to wallow in ignorance or portray a helpless victim. Open up your toolbox and start with what you have, where you’re at. You have the tools you need for now and you’ll keep adding to them as you go. Work on being the master craftsman of your life.